Sh 240 Million Raised for Baby Ayah Medication

According to Pesatoday.com, the family conducted a series of fundraisers with the help of Samaritans what saw money raised in phases and now it has been confirmed that all is set and ready.

Ayah was born in January last year at a whopping 8.3 pounds. At nine months, her developmental progress suddenly reversed. She could no longer lift her head while lying down, sit on her own or clap. Her mother reported.

The baby would later be diagnosed with spinal muscular atrophy which is a genetic disease found in one out of 10,000 children worldwide.

Doctors then prescribed Zolgensma which costs sh 240 million and considered the most expensive drug ever.

The family started raising funds before she would turn two years so that to ensure maximum drug response. This was done to race with the limited time.

“After 33 weeks of sleepless nights and tears, we are here!!! We want to thank God for bringing us this far, for blessing us immensely even when we fall short of His glory, for guiding us and getting us here. For health and wealth. To our family and friends…

“You were the very first to know, we requested for your support, and you went all out for us, you fought for Ayah like your own, even when the world didn’t know about SMA or couldn’t fathom a single treatment could cost millions of dollars!! Thank you for standing with us and helping us create a network and a community!” partly a statement on an Instagram read.

Today, Baby Ayah’s target has been realized through intensive mobilization in and outside the country.